{"id":8248,"date":"2026-07-17T03:38:15","date_gmt":"2026-07-16T22:38:15","guid":{"rendered":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/?p=8248"},"modified":"2026-07-17T03:38:15","modified_gmt":"2026-07-16T22:38:15","slug":"jesy-nelsons-twin-daughters-suffer-fresh-health-setback-after-sma-campaign","status":"publish","type":"post","link":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/?p=8248","title":{"rendered":"Jesy Nelson&#8217;s twin daughters suffer fresh health setback after SMA campaign"},"content":{"rendered":"<p><script>\r\n  atOptions = {\r\n    'key' : '644b717812d811d6a1c1fc5b6ccd6fa6',\r\n    'format' : 'iframe',\r\n    'height' : 90,\r\n    'width' : 728,\r\n    'params' : {}\r\n  };\r\n<\/script>\r\n<script src=\"https:\/\/www.highperformanceformat.com\/644b717812d811d6a1c1fc5b6ccd6fa6\/invoke.js\"><\/script>\r\n<br \/>\n<\/p>\n<div>\n<figure class=\"img-container shareable-item wp-caption\">\n<div class=\"img-wrap\">\n\t\t<img fetchpriority=\"high\" width=\"646\" height=\"440\" src=\"https:\/\/metro.co.uk\/wp-content\/uploads\/2026\/06\/SEI302444306-addc-e1784239710376.jpg?quality=90&amp;strip=all&amp;w=646\" class=\"article-image wp-image-28904412\" alt=\"\" decoding=\"sync\"\/>\t<\/div><figcaption>Former Little Mix singer Jesy Nelson has provided an update on her daughters (Picture: Jordan Pettitt\/PA Wire)<\/figcaption><\/figure>\n<p><a data-ico=\"hyperlink-article\" data-track=\"inline-tag-auto-link_article\" href=\"https:\/\/metro.co.uk\/tag\/jesy-nelson\/\">Jesy Nelson<\/a> has revealed how her twin daughters have suffered a fresh health setback after her campaign to screen newborn babies for spinal muscular atrophy (SMA) secured a major breakthrough.<\/p>\n<p>The former Little Mix star said she \u2018can\u2019t stop crying\u2019 after learning all babies born in England will now be tested for the rare genetic condition at birth.<\/p>\n<p>However, Jesy said that the historic change is \u2018bittersweet\u2019 as her daughters, Ocean Jade and Story Monroe, are \u2018not great\u2019.<\/p>\n<p>The 25-year-old said her twins\u2019 future is uncertain as medics are still assessing how much of their muscles died off before they were diagnosed late and then treated.<\/p>\n<p>Both Ocean and Story were diagnosed with Spinal Muscular Atrophy Type 1, the most severe form of the muscle-wasting disease, after leaving hospital.<\/p>\n<p>However, Jesy said that the diagnosis came too late after irreversible nerve damage and it is likely that they will never walk again.<\/p>\n<figure class=\"img-container shareable-item wp-caption\">\n<div class=\"img-wrap\">\n\t\t<img width=\"646\" height=\"682\" src=\"https:\/\/metro.co.uk\/wp-content\/uploads\/2026\/07\/SEI_303050302-9e2c-e1783065953113.jpg?quality=90&amp;strip=all&amp;w=646\" class=\"article-image wp-image-29025262\" alt=\"Jesy Nelson posing with baby in cafe\" decoding=\"async\" loading=\"lazy\"\/>\t<\/div><figcaption>Jesy previously called herself \u2018the luckiest girl in the world\u2019 to be mum to her daughters, Ocean Jade and Story Monroe (Picture: @jesynelson\/Instagram)<\/figcaption><\/figure>\n<figure class=\"img-container shareable-item wp-caption\">\n<div class=\"img-wrap\">\n\t\t<img width=\"646\" height=\"807\" src=\"https:\/\/metro.co.uk\/wp-content\/uploads\/2026\/07\/SEI_282453148-1bcc.jpg?quality=90&amp;strip=all&amp;w=646\" class=\"article-image wp-image-29142811\" alt=\"Jesy Nelson\" decoding=\"async\" loading=\"lazy\"\/>\t<\/div><figcaption>The singer\u2019s twin daughters were diagnosed with Spinal Muscular Atrophy Type 1 (Picture: Instagram\/jesynelson)<\/figcaption><\/figure>\n<p>Speaking to <a href=\"https:\/\/www.thesun.co.uk\/tvandshowbiz\/39783948\/jesy-nelson-heartache-twin-daughters-health-sma-campaign\/\" target=\"_blank\" rel=\"noreferrer noopener\">The Sun<\/a>, Jesy discussed Ocean and Story\u2019s most recent three-month review at St Ormond Street\u2019s Children\u2019s Hospital where doctors warned that the girls were not responding to the treatment how they had hoped.<\/p>\n<p>\u2018Unfortunately, some of the numbers have gone down,\u2019 she said.<\/p>\n<p>\u2018We had a long discussion and there\u2019s a possibility they may have to go back on treatment, which is just heartbreaking.<\/p>\n<p>\u2018I constantly battle between manifesting they\u2019re going to defy the odds and trying to come to accept that that may not happen.<\/p>\n<p>\u2018It\u2019s a really weird position to be in because you you think \u2018well, if that doesn\u2019t happen, am I just going to feel heartbroken for the rest of my life?\u2019<\/p>\n<p>\u2018Then you worry, if I accept it, am I also manifesting that?\u2019<\/p>\n<div class=\"video-player\">\n<div class=\"video-player\">\n<div class=\"metro-video-player  \" data-track-module=\"article_video-player-with-related-carousel\">\n<div class=\"vjs-video-container vjs-fixed vjs-responsive\">\n<p>\t\t\t\t\t<video id=\"3675591\" class=\"video-js\" 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Nelson has shared the emotional moment she was told about her twins' spinal muscular atrophy (SMA) diagnosis.&quot;,&quot;title&quot;:&quot;Jesy Nelson shares heartbreaking moment she was told of twins' devastating diagnosis&quot;,&quot;videoId&quot;:3675591}\" preload=\"metadata\" playsinline=\"\"><source src=\"https:\/\/videos.metro.co.uk\/video\/met\/2026\/07\/03\/1416003140367597086\/480x270_MP4_1416003140367597086.mp4\" type=\"video\/mp4\"\/><p class=\"vjs-no-js\">To view this video please enable JavaScript, and consider upgrading to a web<br \/>\n\t\t\t\t\t\t\tbrowser that<br \/>\n\t\t\t\t\t\t\t<a href=\"https:\/\/videojs.com\/html5-video-support\/\" target=\"_blank\" rel=\"noopener\">supports HTML5<br \/>\n\t\t\t\t\t\t\t\tvideo<\/a><\/p><\/video>\n\t\t\t\t<\/div>\n<\/p><\/div>\n<\/p><\/div>\n<\/div>\n<p>In her new Prime Video show, Jesy Nelson: Life Changing, the singer also broke down in tears over the guilt she carries and worries her children will blame her when they\u2019re older.<\/p>\n<p>She told the publication: \u2018I know it\u2019s not my fault, but when I watch back videos of when I brought them home and they were kicking their legs, I realise now that over the course of a month, they just stopped.<\/p>\n<p>\u2018That\u2019s the part where the guilt kicks in because I don\u2019t understand how I didn\u2019t see that. Why didn\u2019t I spot that?\u2019<\/p>\n<p>This comes after Jesy <a data-ico=\"hyperlink-article\" href=\"https:\/\/metro.co.uk\/2026\/07\/03\/jesy-nelson-shares-heartbreaking-footage-moment-told-twins-devastating-diagnosis-29024841\/\">shared heartbreaking footage of the moment<\/a> she was told about her twins\u2019 devastating diagnosis.<\/p>\n<p>The 35-year-old posted footage from her\u00a0<a data-ico=\"hyperlink-article\" href=\"https:\/\/metro.co.uk\/tag\/amazon-prime-video\/\">Amazon Prime Video<\/a>\u00a0series: \u2018Jesy Nelson: Life Changing\u2019, which she \u2018urges\u2019 everyone to watch.<\/p>\n<p>In the clip, Jesy can be seen rocking one of her babies from side to side while she and\u00a0<a data-ico=\"hyperlink-article\" href=\"https:\/\/metro.co.uk\/2026\/01\/19\/inside-jesy-nelsons-relationship-boyfriend-zion-foster-twins-heartbreaking-diagnosis-2-26387619\/\">her former partner, Zion Foster,<\/a>\u00a0receive news that her twins\u2019 \u2018genetic test came back positive\u2019 for the\u00a0<a data-ico=\"hyperlink-article\" href=\"https:\/\/metro.co.uk\/2026\/03\/23\/jesy-nelson-says-heart-feels-super-heavy-despite-huge-sma-update-27627917\/\">life-altering condition<\/a>.<a data-ico=\"hyperlink-article\" href=\"https:\/\/metro.co.uk\/author\/charlotte-minter\/\"\/><\/p>\n<p class=\"metro-more-link\"><svg><title>Arrow<\/title>\n<use xlink:href=\"#common-right-arrow\" href=\"#common-right-arrow\"\/><\/svg><span class=\"mor-link\" data-track-module=\"mor-link_article\">MORE: <a data-ico=\"hyperlink-article\" href=\"https:\/\/metro.co.uk\/2026\/07\/15\/jesy-nelsons-ex-zion-foster-speaks-painful-false-claims-twin-daughters-29142588\/?ico=more_text_links\" class=\"\">Jesy Nelson\u2019s ex Zion Foster speaks out after \u2018painful false claims\u2019 about twin daughters<\/a><\/span><\/p>\n<p class=\"metro-more-link\"><svg><title>Arrow<\/title>\n<use xlink:href=\"#common-right-arrow\" href=\"#common-right-arrow\"\/><\/svg><span class=\"mor-link\" data-track-module=\"mor-link_article\">MORE: <a data-ico=\"hyperlink-article\" href=\"https:\/\/metro.co.uk\/2026\/06\/24\/jesy-nelson-rages-health-minister-outrageous-response-daughters-campaign-28904261\/?ico=more_text_links\" class=\"\">Jesy Nelson rages at health minister for \u2018outrageous\u2019 response to daughter\u2019s campaign<\/a><\/span><\/p>\n<section id=\"share-buttons-bottom\" class=\"share-buttons share-buttons-bottom\"><a class=\"metro-button share-bar-comments\" data-vars-position=\"bottom\" href=\"#metro-comments-container\"><br \/>\n\t\t\t<span><svg><title>Comment now<\/title>\n<use xlink:href=\"#social-comment\" href=\"#social-comment\"\/><\/svg><\/span><br \/>\n\t\t\t<span class=\"share-bar-comments__label\">Comments<\/span><br \/>\n\t\t<\/a><a data-ico=\"hyperlink-article\" class=\"metro-button share-bar-preferred-source\" data-vars-position=\"bottom\" href=\"https:\/\/google.com\/preferences\/source?q=https:\/\/metro.co.uk\" target=\"_blank\"><br \/>\n\t\t\t\t<span><svg><title>Add Metro as a Preferred Source on Google<\/title>\n<use xlink:href=\"#social-preferred-source\" href=\"#social-preferred-source\"\/><\/svg><\/span><br \/>\n\t\t\t\t<span class=\"share-bar-preferred-source__label\">Add as preferred source<\/span><br \/>\n\t\t\t<\/a><\/section>\n<\/p><\/div>\n<script async=\"async\" data-cfasync=\"false\" src=\"https:\/\/pl30214220.effectivecpmnetwork.com\/9ab3d4df8a7e1a6171e16ddbf732cc19\/invoke.js\"><\/script>\r\n<div id=\"container-9ab3d4df8a7e1a6171e16ddbf732cc19\"><\/div>\r\n\n","protected":false},"excerpt":{"rendered":"<p>Former Little Mix singer Jesy Nelson has provided an update on her daughters (Picture: Jordan Pettitt\/PA Wire) Jesy Nelson has revealed how her twin daughters have suffered a fresh health setback after her campaign to screen newborn babies for spinal muscular atrophy (SMA) secured a major breakthrough. The former Little Mix star said she \u2018can\u2019t&#8230;<\/p>\n","protected":false},"author":1,"featured_media":8249,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"fifu_image_url":"https:\/\/metro.co.uk\/wp-content\/uploads\/2026\/06\/SEI302444306-addc-e1784239710376_1784239944.jpg?quality=90&strip=all&w=1200&h=630&crop=1","fifu_image_alt":"","footnotes":""},"categories":[20],"tags":[],"class_list":["post-8248","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-celebrity-gossip"],"brizy_media":[],"_links":{"self":[{"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=\/wp\/v2\/posts\/8248","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=8248"}],"version-history":[{"count":0,"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=\/wp\/v2\/posts\/8248\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=\/wp\/v2\/media\/8249"}],"wp:attachment":[{"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=8248"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=8248"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/usnews-14267fa.ingress-comporellon.ewp.live\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=8248"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}